Alzheimer's Disease: Preserving Dad’s same old storiesAug 23, 2021 02:42PM ● By John Coleman
Somehow I missed the news that television’s absentminded Lieutenant Columbo died in 2011, but a list of notables who died of Alzheimer’s brought me up to speed. Rita Hayworth, Jimmy Stewart, Pat Summit and Perry Como share Peter Falk’s fate of gradual disappearance.
Ever since my dad passed from the disease in 2012, I’ve developed a special sympathy for members of his unfortunate tribe. My favorite writer, E. B. White, said in his last years, “[I] am dependent on seven different pills to stay alive, and can’t remember whether I took the pills or didn’t.”
Nancy Reagan’s “long, long goodbye” to Ronnie reached across every aisle with its truth. Tough guy Charles Bronson was no match. The dignified Margaret Thatcher succumbed.
Hardly anybody remembers Auguste Deter, whose doctor, Alois Alzheimer, examined her in the early 1900s in Germany. When asked to write her name, she stopped a couple of letters in and said, “Ich hab mich verloren.” (I have lost myself.)
At the moment, an estimated 5.1 million Americans are looking for themselves. Dad would stare at a wall of framed photographs—children, grandchildren and other relatives. Still mostly in possession of himself, he explained his mission: “I don’t want to lose you.”
But Alzheimer’s has no off-ramp. Porch sitting at my house the evening before he moved into assisted living, he stared into the distance, defeated. I said, “Dad, would you like me to tell you about your life?”
His eyes stayed blank. “Boy, I sure wish you would.”
Denny Coleman was a Wesleyville Bulldog who scored a game-high 5 points on the basketball court in the early 1940s. He enlisted in the Navy toward the end of World War II but saw no action. He married Dolly Miller and had four children.
“I’m your youngest, Dad.”
Sometimes I was his cousin or brother, and on a good day his son.
I kept talking, but the details melted away immediately. He was president of his condominium association for many years. His standard response was, “Well, if you say so.”
The only thing he knew for sure was that I belonged to him. Each time he spotted me coming his way, he let out an “aw” of relief and put out his arms as if for a life preserver.
This image of Dad going under is haunting, but it has yielded a blessing. My pastoral work frequently takes me among folks who cry, “Ich hab mich verloren.” They tell the same stories over and over again, and I now find them beautiful.
I hear it all: love, victory, defeat, joy, birth, death. My old friends start off a memory with, “Did I ever tell you about...?” I respond with a fib. “Gosh, I’m not sure. Tell me again, just in case.”
What happens next is a privilege. As they speak, it’s as if they blow the dust off a cigar box, take out a charm bracelet or a Purple Heart, and hold it out to me. As we examine it, I remember the box has maybe two or three treasures left, and nobody knows when they’ll be stolen. Whatever the plot, my friends all say the same thing: “I’m losing myself, but I still have this story. Let me tell you.”
As I receive a memory of love or grief so old and profound that speaking it is a burden lifted, I make a silent promise: “When you can’t find yourself anymore, I’ll keep your stories safe. Every now and then I’ll see your face and listen to the gifts you kept giving me. Don’t be afraid. I won’t let you disappear.”